Life has been a whirlwind lately, especially with medical appointments and preparing for Barney’s transition to daycare. Starting June 3rd, Barney will begin daycare as our night nurse’s time with us ends. Although it’s bittersweet, we believe this daycare will provide a nurturing environment for him. Balancing medical commitments and childcare has been challenging, but we’re optimistic about the positive changes ahead.
Happy belated Mother’s Day to all the amazing moms! My first Mother’s Day was filled with joy as we celebrated at the beach. Surrounded by family, I cherished the blessings of motherhood. Yet, I also faced the sobering reality of my health, leading me to redefine dreams and prioritize well-being.
Dining out with dietary restrictions can be challenging, as I learned this week when my meals were served with salt despite clear instructions. These frustrating experiences remind me why I often prefer home-cooked meals. Until my dietary needs change, I’ll likely limit dining out and focus on safer options at home.
After a rough night with a migraine, I’m feeling better and ready to share details from my recent four-hour transplant team meeting. The session deepened my understanding of the process, and I’m grateful for my family’s support. Stay tuned for more updates!
Recently, I’ve been grappling with persistent pain that’s forced me to confront it head-on. After a tough day with dialysis and a severe migraine, I’m reflecting on pain’s deeper significance, exploring how it might teach me resilience and spiritual growth.
Parenthood is full of precious moments. Today, despite the challenges, I shared a special first with Barney, lying beside him as he played with my sweatshirt drawstrings. It was a simple, heartwarming moment that deepened our bond—one I’ll cherish forever.
Living with chronic illness turns “How are you feeling?” into a complex question. Chronic pain, low energy, and emotional grief make it difficult to give a simple, positive answer, but I’m learning how.
We celebrated my dad’s 69th birthday with a lively dance party, reflecting on the profound nature of love. I felt deep gratitude for my parents’ unwavering support and the privilege of experiencing such strong, enduring love that sustains us through life’s challenges.
I made the bold decision to cut my hair into a pixie style due to the challenges of maintaining long hair with a dialysis catheter. This change has been both liberating and practical.
Take a peak into what dialysis is like. Dialysis is a life-saving yet exhausting process for kidney failure patients.