Hi Everyone,

I’ve had a lot of people reach out asking how I’m doing—I know I haven’t sent an update this week. Thank you for checking in and for your love and support. Even if I haven’t written or called back, please know it means the world to me.

This won’t be a very introspective email—I’m not feeling well. The main update is that my viral numbers have come down, which is encouraging. But I still need to stay on the nightly IV infusions until the virus is completely undetectable. Once that happens, we’ll do more testing to see what’s next.

Medically, my lab values—including kidney function—are stable, indicating no significant change at this time.

At the same time, I’m dealing with some tough side effects. I’ve been getting migraines every night that keep me up for hours—possibly from the infusions or the new anti-rejection medication. My neurologist just prescribed a new daily migraine medication yesterday, so I’m hoping that brings some relief.

I’m also managing hand tremors, constant fatigue, and abdominal pain. I sleep and rest a lot throughout the day.

I haven’t been up for much—writing, phone calls, or even small talk. This week, I’m just moving minute by minute, hour by hour, day by day.

Thank you again for checking in and for your continued support. If you’re celebrating Shabbat tonight, Shabbat Shalom. Wishing everyone a restful weekend.

Love,
Danielle