I have eight people actively testing to see if they could be possible kidney donors for me.
I’ve been on the struggle bus this weekend with fatigue.
I have important health updates: I have a crucial meeting with INOVA Fairfax to get listed for a deceased kidney donor in Virginia, and my appointment at John Hopkins in Baltimore has been moved up, allowing me to get listed in Maryland sooner. These steps increase my chances for a kidney donor, bringing hope and gratitude for the support I receive.
Barney turns 5 months old tomorrow and loves his bouncer, filling the house with his giggles. Despite facing dialysis on the 4th of July, I hope to catch some fireworks later. Barney will be with Ian and my parents, giving me comfort. Wishing everyone a fantastic 4th of July filled with love, laughter, and beautiful memories.
Last Thursday, I was evaluated at George Washington Hospital, which offers a fast-track option for living donor transplants with less bureaucratic red tape. Excitingly, three incredible individuals have stepped forward as potential kidney donors, filling me with immense hope. Sharing my story increases my chances of finding a match, and you don’t have to live in Maryland to donate—you can be tested from any state. Please share my journey with your network to spread hope and potentially save a life. Thank you for your continued support.
Life has been a whirlwind lately, especially with medical appointments and preparing for Barney’s transition to daycare. Starting June 3rd, Barney will begin daycare as our night nurse’s time with us ends. Although it’s bittersweet, we believe this daycare will provide a nurturing environment for him. Balancing medical commitments and childcare has been challenging, but we’re optimistic about the positive changes ahead.
After a rough night with a migraine, I’m feeling better and ready to share details from my recent four-hour transplant team meeting. The session deepened my understanding of the process, and I’m grateful for my family’s support. Stay tuned for more updates!
Living with chronic illness turns “How are you feeling?” into a complex question. Chronic pain, low energy, and emotional grief make it difficult to give a simple, positive answer, but I’m learning how.