For me, it has been hard to maintain identity and self in so many circumstances… But maintaining identity is even harder when faced with sickness, pain, and physical limitations. I never knew I could be tested to this degree.
Archive for month: July, 2025
During a late-night MRI while I was in the hospital, I had a vivid visualization of my grandfather — the person my son is named after — coming to guide me.
I’m still meeting with specialists regarding my rare disease — and the search for answers continues to be confusing. I recently met with a nephrologist at Johns Hopkins who specializes in aHUS. While the hematologist I saw at Georgetown believed I had the disease, this specialist disagrees.