So — is this bad news? Yes. I’m disappointed that my new kidney is officially dead. It was a huge sacrifice on Brad’s part, my donor, and I loved the energy and zest I felt for those nine weeks. Is it good news? Weirdly, also yes. My native kidneys are holding on.
Maybe life isn’t about a singular happily ending. Maybe it’s about the moments—Those three mornings I woke up feeling better, like this morning hanging out with Barney… I’ll take them. They are moments of ‘happily.’
Thankfully, one of my nephrologists took my concerns seriously. He re-reviewed the genetic test and looked into other autoimmune causes. That’s how he came to diagnose me with aHUS.